Coloplast news from 2018

28 Feb 2018
More action on continence care desperately needed to help children

More action on continence care desperately needed to help children

Support for children and young people with bladder and bowel issues is inadequate and needs to be addressed urgently, a leading group of charities, healthcare professionals, researchers and industry partners have concluded in a new report published today (28th February 2018).

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Support for children and young people with bladder and bowel issues is inadequate and needs to be addressed urgently, a leading group of charities, healthcare professionals, researchers and industry partners have concluded in a new report published today (28th February 2018).

The report ‘It happens to me too’, was launched in Parliament at an event hosted by Co-Chair of the All-Party Parliamentary Group for Continence Care, Rosie Cooper MP. Three years on from the launch of NHS England’s Excellence in Continence Care (EICC) report, it calls for a renewed focus on care for children and young people, labelling the implementation of NHS England’s work ‘painfully slow’.

Around 900,000 children and young people suffer with bladder and bowel control problems with one in three (30%) of children suffering with constipation and up to one in thirty (2-3%) of children experiencing daytime wetting.

The report highlights the significant stigma that exists around bladder and bowel issues. Almost two thirds of young people said they would be embarrassed to see a doctor about continence issues resulting in a significant impact on their day to day lives.

Despite the burden on the lives of children and young people, evidence shows a lack of early intervention in diagnosing and treating bladder and bowel conditions and the risk that young people are not supported through the transition from child to adult services.

Recommendations in the report include:

  • Swift implementation of EICC to deliver a clear framework for delivering high quality bladder and bowel services including knowledge over patient rights and access to services.
  • One community-based service covering day and night time wetting, soiling and constipation problems.
  • Local services should seek to identify people with continence issues who may be at risk and offer a comprehensive assessment to look for ‘red flags’ indicating an underlying condition.
  • Bladder and bowel services for young people should employ a paediatric continence nurse specialist.
  • Local pathways should be implemented, through which healthcare professionals can refer young people on to other services such as specialist care, social services or mental health services if appropriate.

Chair of the Paediatric Continence Forum (PCF), Dr Penny Dobson MBE said: “Many children and young people with bladder and bowel problems suffer in silence, and whilst help is out there it can be difficult to navigate. We have to act now to ensure that the help and support is there and is accessible so that young people can get on with their lives and realise their full potential.

“The social stigma that exists around bladder and bowel issues prevents so many children and young people from coming forward and seeking the help they so desperately need. Some suffer in silence for years, not knowing that solutions exist. Many don’t know who to turn to and sometimes fall victim to bullying at school or on social media. The message for them is clear - there is no need to be ashamed.

“We recognise the strain facing the NHS and the pressure staff are working under but feel very strongly that providing comprehensive children’s continence services on the NHS will not only result in better care but reduce costs in the long term. I hope the publication of today’s report marks a significant step towards addressing these challenges.”

ENDS

Notes to Editors

  1. The infographic ‘The Stigma Surrounding Bladder and Bowel Issues’ is available here
  2. The report was developed in partnership with the Paediatric Continence Forum (PCF), charities ERIC The Children’s Bladder and Bowel Charity and Bladder & Bowel UK, the University of Bristol and Coloplast.
23 Feb 2018
NICE publishes Peristeen® guidance to treat constipation and faecal incontinence

NICE publishes Peristeen® guidance to treat constipation and faecal incontinence

Today sees the publication of the National Institute for Health and Care Excellence’s (NICE) medical technology guidance: Peristeen transanal irrigation system for managing bowel dysfunction (MTG36).

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Today sees the publication of the National Institute for Health and Care Excellence’s (NICE) medical technology guidance: Peristeen transanal irrigation system for managing bowel dysfunction (MTG36).

Whilst there are currently a number of ways to treat bowel dysfunction for both functional and neurological patients (including changes to a person’s diet and hydration levels and the use of laxatives and pads), many patients remain symptomatic. For some of these patients, transanal irrigation (TAI) with Peristeen offers a cost effective alternative which can help to optimise the emptying of the bowel. 

Peristeen is a TAI system manufactured by Coloplast for people suffering from faecal incontinence and constipation. Using Peristeen has been shown to improve bowel emptying and hence minimise the likelihood of involuntary bowel leakage.

The key recommendations in the NICE guidance are:

  • There is evidence for adopting Peristeen in children and adults with bowel dysfunction
  • Peristeen can reduce the severity of constipation and incontinence, improve quality of life and promote independence
  • Peristeen is most effective when it is offered with specialist training for users, carers and NHS staff, and dedicated patient support
  • Peristeen is likely to provide additional clinical benefits for patients and the NHS at no additional cost than standard bowel care.

Furthermore, the NICE medical technology advisory committee acknowledged that Coloplast has a range of community-based and non-clinical services for Peristeen users and prescribers. These include a team of specialist nurses in the UK providing training and support for patients, combined with a telehealth programme that provides easily accessible patient support over the phone.  

Research has shown that 66 287 people were admitted into hospital in 2014/15 1 because of constipation problems, equating to 182 admissions per day. Of this number, 48 409 (73%) were emergency hospital admissions. Alongside the health complications and physical challenges attached to being constipated, there are also long-term quality of life and wellbeing issues for people with continence problems including anxiety and social exclusion.  Appropriate treatment, designed for the individual patient, can therefore have wider implications apart from improving health outcomes.

The publication of this NICE appraisal offers a solution to some of the estimated 1 in 7 adults and 1 in 3 children who suffer from constipation at any one time 2.  

Simon Pannett, Coloplast Head of Market Access said, “Peristeen has been in the market for several years now and we are delighted that it has received a positive recommendation in NICE’s Medical Technologies Evaluation Programme (MTEP).

“Transanal irrigation (TAI) systems go a long way to enabling users with bowel dysfunction to lead as normal and dignified lives as possible. Although there are currently several TAI products available, we believe very strongly that ours has the strongest evidence base of its efficacy and acceptability to patients.

“NICE’s rigorous process of review provides users with the assurance that not only are our products of the highest quality but with the appropriate training and use, they should also have good health outcomes.”

Dr Anton Emmanuel, Consultant Gastroentrologist at University College London Hospitals said, “Over the last ten years transanal irrigation has changed the treatment map for patients with bowel dysfunction (patients with constipation and faecal incontinence) whether due to neurological or functional conditions. The NICE appraisal is a critical update of the benefits and cost efficacy of Peristeen, and it will hopefully open up the treatment for those patients whose symptoms are not adequately relieved with current treatments.”

June Rogers MBE, Paediatric Continence Specialist at Bladder and Bowel UK said “This is good news for children and young people with continence problems, who are sometimes sadly forgotten by health services, as the focus often is on adult care.

“Children with chronic constipation resulting in soiling, those born with anorectal malformations and those with a disability, or other problems resulting in no or poor bowel control have had limited treatment options until now.  This new NICE guidance means that these young patients will now have another form of treatment available from the NHS.  Hopefully this will also reduce the need for them to undergo surgery.  It is important now to ensure that all paediatricians, GPs and nurses who work with children and young people are made aware of this promising therapy.”

Brenda Cheer, Paediatric Specialist Continence Nurse from ERIC, The Children’s Bowel and Bladder Charity said “At ERIC we are well aware of the enormous benefit TAI systems offer to children and young people. No child should have to suffer from ongoing faecal soiling; if laxatives and regular, effective toileting do not prevent it then they should be offered a rectal intervention.

“This new NICE guidance will help to spread that message more widely. It will add credibility to the prescription of Peristeen both for long term conditions and for those that require it temporarily to enable the bowel to rehabilitate. TAI is well tolerated by children and young people; we should not shy away from its use.”

Carol Adcock, a spinal cord injury Nurse Specialist with Spinal Injuries Association said “Effective bowel care is crucial in helping spinal cord injured people lead a fulfilled life. Transanal irrigation products like Peristeen are known to be both very effective and popular with spinal cord injured people as they reduce the severity of constipation and incontinence, improve quality of life and promote independence. We’re very happy that NICE has acknowledged the role that Peristeen plays in supporting good bowel function.”

 

ENDS

 

Notes to editors

1 HSCIC, Hospital Episode Statistics, Admitted Patient Care – England 2014-2015 (Primary Diagnosis: 4 Character) https://digital.nhs.uk/catalogue/PUB19124

2 Coloplast (2016) The Cost of Constipation Report https://www.coloplast.co.uk/Global/UK/Continence/Cost_of_Constipation_Report_FINAL.pdf

 

For more information, contact Gerald Chan gbgch@coloplast.com / 07469154085

Download a copy of the NICE guidance here https://www.nice.org.uk/guidance/MTG36

Access more information on the NICE MTEP programme here https://www.nice.org.uk/about/what-we-do/our-programmes/nice-guidance/nice-medical-technologies-evaluation-programme  

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