Sometimes it can be difficult to take in all information or to ask questions during an appointment, particularly if you receive disappointing news regarding your diagnosis.
If you can, take someone with you to your appointment. This could be a carer, friend, or family member. It’s easy to forget things during an appointment, especially if you’re feeling worried. Having someone with you can help you remember what was said and ask questions if needed.
If you feel that you have not been given a full explanation as to why you have not been prescribed a particular product, you can take the following actions:
- Ask for a follow-up appointment: You may want to write down the questions and concerns you have in advance and take them with you, so you don’t forget important points. Be prepared with information that supports your view.
- Ask for the reason to be written down. This helps you keep a clear record of what was decided. You can show this to your local MP or health team if needed. You might also get a letter after your appointment (sent to you and your GP) or you can log onto the NHS App if it has been added there.
- Ask for specialist support: If you’re unsure about the products or care you’re receiving, or feel like you’re not getting the right answers, you can ask to see a specialist stoma or continence nurse. These nurses are trained to support people with personal health needs. They can help you find the right products, give you ongoing support, and speak up for what you need.